Language:
English
Year of publication:
2022
Titel der Quelle:
Social Science and Medicine
Angaben zur Quelle:
303 (2022) pp 8
Keywords:
Down syndrome Diagnosis
;
Human chromosome abnormalities Diagnosis
;
Prenatal diagnosis
;
Prenatal diagnosis
;
Human chromosome abnormalities Diagnosis
Abstract:
The prenatal genetic testing arena has witnessed great changes over the past decades and has been the focus of extensive discussion of its ethical, legal, and social implications. Germany and Israel were previously known for strongly contrasting regulations and attitudes of both professionals and laypeople towards genetic testing. Based on qualitative analysis of 37 semi-structured interviews, this study compares German and Israeli family members of individuals with Down syndrome and disability activists, thereby examining the interplay between lived experience and cultural scripts and their impact on the formation of personal views toward disability and prenatal testing. We have found that the differences between Germany and Israel remain, despite the emergence of new technologies, and that family members and disability activists reflect the norms of their socio-cultural environments, thereby emphasising the role society plays in shaping the views of those with direct experience of disability.
Note:
Appeared also in "Genetic Responsibility in Germany and Israel" (2022) 165-189.
DOI:
10.1016/j.socscimed.2022.115021
URL:
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